August 3

Cloves Syndrome Awareness Day

Join us in raising awareness for Cloves Syndrome on this special day - together, we can make a difference and support those affected by this rare disease.

Yearly Date
August 3
Type
Day
Category
Health

Introduction

Get ready to raise awareness and show support for those affected by Cloves Syndrome on August 3, also known as Cloves Syndrome Awareness Day. This rare genetic disorder affects various parts of the body, causing overgrowth, vascular malformations, and other health complications. The name "Cloves" is an acronym for the different symptoms associated with this condition: Congenital lipomatous overgrowth, Vascular malformations, Epidermal nevi, Spinal/Skeletal abnormalities. On this day, we honor those who are living with Cloves Syndrome and their families, while spreading knowledge about this lesser-known disorder. Let's come together to make a positive impact and bring hope to those affected by Cloves Syndrome.

Cloves Syndrome Awareness Day Timeline

2007
Cloves Syndrome Identification
The first cases of Cloves Syndrome were identified, marked by previously unknown combinations of symptoms, leading to the establishment of the CLOVES acronym.
2012
Genetic Origin Discovered
Scientists identified the genetic mutation in the PIK3CA gene that causes Cloves Syndrome, significantly advancing the understanding of the disease.
2014
First Cloves Syndrome Conference
The first international conference dedicated to Cloves Syndrome was held, bringing together patients, families, and medical professionals.
2016
Foundation of CLOVES Syndrome Community
The non-profit organization CLOVES Syndrome Community was founded to provide support to those affected and raise awareness about the condition.
2018
First Cloves Syndrome Awareness Day
The first Cloves Syndrome Awareness Day was celebrated, spreading knowledge about the disorder and showing support for those affected.
2020
Cloves Syndrome Research Advances
Researchers made significant advances in understanding the syndrome and developing targeted treatments, offering hope for improved quality of life for those affected.

How to Celebrate Cloves Syndrome Awareness Day

1

Host a fundraiser

Organize a fundraiser event to raise awareness and funds for Cloves Syndrome. This could be a charity dinner, walk-a-thon, or auction.

2

Share information on social media

Spread awareness about Cloves Syndrome by sharing facts and information on social media platforms. Use hashtags like #ClovesSyndromeAwareness to reach a wider audience.

3

Organize a community walk

Gather your friends, family, and community members for a walk to raise awareness for Cloves Syndrome. You can also sell t-shirts or other merchandise to raise funds for research and support for those affected by the disorder.

4

Attend a support group meeting

If you or someone you know has been diagnosed with Cloves Syndrome, attending a support group meeting can be a great way to connect with others and share experiences. It can also provide valuable resources and information.

5

Educate yourself and others

Take the time to learn more about Cloves Syndrome and share what you learn with others. The more people know about this rare disorder, the more support and understanding those affected by it will receive.

Why Cloves Syndrome Awareness Day is Important

A

It raises awareness for a rare condition

Cloves Syndrome is a genetic disorder that affects a small number of individuals worldwide. By recognizing and acknowledging Cloves Syndrome Awareness Day, we can bring more attention to this condition and educate others about its symptoms and challenges.

B

It shows support for those affected by the syndrome

For those living with Cloves Syndrome, it may feel isolating to have such a rare condition. By celebrating Cloves Syndrome Awareness Day, we are showing our support and solidarity for those who may feel alone in their struggles.

C

It promotes research and fundraising for a cure

With increased awareness comes increased funding for research and potential treatments for Cloves Syndrome. By participating in activities or donating on Cloves Syndrome Awareness Day, we can help make strides towards finding a cure for this rare condition.

Cloves Syndrome Awareness Day Dates

Year
Date
Day
2023
Aug 2
Wednesday
2024
Aug 2
Friday
2025
Aug 2
Saturday
2026
Aug 2
Sunday
2027
Aug 2
Monday