August 1-31

Spinal Muscular Atrophy Awareness Month

Join the fight against Spinal Muscular Atrophy this month and help raise awareness for those affected by this rare disease.

Yearly Date
August 1
Type
Month
Category
Health

Introduction

Get ready to spread awareness and support for those affected by Spinal Muscular Atrophy (SMA) during the entire month of August, which is officially recognized as SMA Awareness Month. This debilitating genetic disease affects the motor nerve cells in the spinal cord, leading to progressive muscle weakness and loss of movement. But despite its challenges, the SMA community remains strong and united in their fight against this condition. Throughout the month, you can show your support by learning more about SMA, sharing information, and participating in fundraising events. Let's come together and make a positive impact on those living with SMA!

Spinal Muscular Atrophy Awareness Month Timeline

1891
SMA First Described
Spinal Muscular Atrophy was first medically described by German physician Guido Werdnig.
1956
SMA Types Defined
Scientists identified and categorized the four types of SMA: Type I, II, III, and IV, based on age at onset and maximum function achieved.
1995
SMN1 Gene Identified
Scientists discovered the SMN1 gene, the main cause of most cases of SMA.
2007
August as SMA Awareness Month
August was officially recognized as Spinal Muscular Atrophy Awareness month to increase awareness and understanding about this disease.
2016
First SMA Treatment Approved
The FDA approved Spinraza (nusinersen), the first drug treatment for Spinal Muscular Atrophy.
2019
Gene Therapy for SMA
The FDA approved Zolgensma, a one-time gene therapy for kids under 2 with SMA.

How to Celebrate Spinal Muscular Atrophy Awareness Month

1

Organize a fundraising event

Host a charity event, such as a walk-a-thon or a silent auction, to raise awareness and funds for Spinal Muscular Atrophy research and support services.

2

Share educational materials

Spread awareness by sharing educational materials about Spinal Muscular Atrophy with your friends, family, and community. This could include pamphlets, infographics, or online resources.

3

Wear purple

Purple is the official color for Spinal Muscular Atrophy awareness. Show your support by wearing something purple, such as a t-shirt, bracelet, or ribbon throughout the month.

4

Start a social media campaign

Use social media platforms to spread awareness about Spinal Muscular Atrophy. Share facts, personal stories, and ways to get involved using hashtags like #SMAAwarenessMonth or #CureSMA.

5

Volunteer at a local organization

Find a local organization that supports individuals and families affected by Spinal Muscular Atrophy and offer your time and support as a volunteer. This is a great way to make a direct impact in your community.

Why Spinal Muscular Atrophy Awareness Month is Important

A

Raising awareness for a rare disease

Spinal Muscular Atrophy (SMA) is a relatively unknown disease, but it affects thousands of people worldwide. By dedicating an entire month to raising awareness, we can shed light on this debilitating condition and educate others about its impact.

B

Creating a sense of community

By participating in Spinal Muscular Atrophy Awareness Month, individuals and families affected by SMA can come together and support one another. This sense of community provides comfort and strength during difficult times, while also showing those affected that they are not alone.

C

Fundraising for research

One of the main objectives of SMA Awareness Month is to raise funds for research towards finding a cure. By bringing attention to the disease and its effects, we can encourage more people to donate and support organizations working towards a cure. Every little bit helps in the fight against SMA!

Spinal Muscular Atrophy Awareness Month Dates

Year
Date
Day
2023
Jul 31
Monday
2024
Jul 31
Wednesday
2025
Jul 31
Thursday
2026
Jul 31
Friday
2027
Jul 31
Saturday