Have a Holiday Idea? Submit and Get It Voted In!
Submit & Vote
.svg)
Join us in spreading awareness and supporting those affected by EDS during this special month dedicated to raising awareness for the condition.
Get ready to raise awareness and support for those living with Ehlers-Danlos Syndrome (EDS) as we kick off EDS Awareness Month on May 1! EDS is a rare genetic disorder that affects the body's connective tissues, causing symptoms such as joint hypermobility, chronic pain, and skin fragility. This month-long observance was first recognized in 1987 by the Ehlers-Danlos National Foundation in an effort to educate the public about this often misunderstood condition. Let's use this month to spread understanding and support for those living with EDS and their families.
<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1901</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Identification of EDS</div><div class='timeline-text'>Ehlers-Danlos Syndrome was first identified and described by two dermatologists, Edvard Ehlers from Denmark and Henri-Alexandre Danlos from France.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1987</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First EDS Awareness Month</div><div class='timeline-text'>The Ehlers-Danlos National Foundation officially recognized May as EDS Awareness Month in an effort to raise knowledge and understanding.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1997</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>International EDS Foundation Formation</div><div class='timeline-text'>An international organization, the Ehlers-Danlos Society, was established to provide global solutions for EDS research, collaboration, and patient support.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2012</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Global Learning Conference</div><div class='timeline-text'>EDS communities around the world come together for the first time at a learning conference in Ghent, Belgium to exchange knowledge and expertise.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2017</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>New EDS Types Defined</div><div class='timeline-text'>The International Consortium on the Ehlers-Danlos Syndromes redefines 13 different types of EDS, improving diagnosis and research.</div></div></div>
<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Educate yourself and others</h3><p id='' class='facts-text'>Take the time to learn more about EDS (Ehlers-Danlos Syndrome) and share your knowledge with friends and family. This can help raise awareness and understanding of the condition.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Organize a fundraiser</h3><p id='' class='facts-text'>Get creative and organize a fundraiser to support EDS research and awareness. This could be anything from a bake sale to a charity walk or run.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Share your story</h3><p id='' class='facts-text'>If you or someone you know has EDS, share your personal story on social media or start a blog. This can help raise awareness and provide support for others living with the condition.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Wear zebra stripes</h3><p id='' class='facts-text'>Zebra stripes are the symbol for EDS awareness. Wear some zebra print clothing or accessories to show your support and start conversations about the condition.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Attend an EDS event</h3><p id='' class='facts-text'>Check out local events or conferences focused on EDS and attend to learn more, connect with others, and support the cause.</p></div></div>
<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Raise Awareness and Educate Others</h3><p id='' class='whywelove-text'>EDS Awareness Month is crucial in spreading information and educating others about Ehlers-Danlos Syndrome. This rare genetic condition affects connective tissues and can have a huge impact on a person's life. By raising awareness, we can help to educate others and promote understanding and compassion for those living with EDS.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Advocate for Research and Funding</h3><p id='' class='whywelove-text'>EDS Awareness Month also provides an opportunity for advocating for more research and funding towards finding better treatments and potentially even a cure for this condition. By highlighting the challenges faced by those with EDS, we can encourage support from individuals, organizations, and government agencies towards making progress in improving the lives of those affected.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Show Support and Solidarity</h3><p id='' class='whywelove-text'>Lastly, EDS Awareness Month is important because it allows us to come together as a community to show support and solidarity for those living with EDS. By participating in events and sharing our stories, we can create a sense of belonging and offer hope to those who may feel alone in their struggles. Together, we can make a difference in the lives of those affected by this condition.</p></div></div>
EDS Awareness Month is celebrated on May 1 every year. In 2024 EDS Awareness Month will occur on a Wednesday.
2023
May 1
Monday
2024
May 1
Wednesday
2025
May 1
Thursday
2026
May 1
Friday
2027
May 1
Saturday
.svg){kind=small}
.svg){kind=small}
