Date
Thursday
May

May 1-31

Huntington’s Disease Awareness Month

Join the fight against Huntington's Disease this month and help raise awareness for this debilitating condition. Every action makes a difference!

Yearly Date
May 1
Type
Month
Category
Health

Introduction

Get ready to raise awareness and support for Huntington's Disease during the entire month of May, also known as Huntington's Disease Awareness Month. This month-long observance was first established in 1993 by then-president Bill Clinton, as a way to educate the public about this rare and devastating neurological disorder. Despite its serious nature, there are ways to get involved and make a difference, from donating to research efforts to participating in local events. Let's come together and show our support for those affected by Huntington's Disease!

Huntington’s Disease Awareness Month Timeline

1872
Disease Discovery
American doctor George Huntington first describes the symptoms of what would later become known as Huntington's disease.
1968
Huntington's Disease Society Establishment
The Huntington's Disease Society of America (HDSA) is established to support individuals affected by the disease and promote research into treatments and cures.
1983
Genetic Marker Discovery
Scientists identify the first genetic marker for Huntington's disease, allowing for earlier and more accurate diagnosis.
1993
Inaugural Awareness Month
President Bill Clinton officially designates May as Huntington's Disease Awareness Month in order to increase public understanding of the condition.
2001
Genetic Therapy Breakthrough
The first successful demonstration of gene therapy in a Huntington's disease animal model is reported, opening up new potential treatment strategies.

How to Celebrate Huntington’s Disease Awareness Month

1

Host a fundraising event

Organize a charity event such as a walk, run, or gala to raise awareness and funds for Huntington’s disease research. This is a great way to involve the community and make a meaningful impact.

2

Share educational resources

Spread awareness by sharing informative articles, videos, or other resources about Huntington’s disease on social media platforms or through email. This can help educate others about the disease and its impact.

3

Volunteer at a local organization

Reach out to organizations that support individuals and families affected by Huntington’s disease and offer to volunteer your time. This could include helping with events, providing support to patients, or raising awareness in the community.

4

Wear blue for Huntington’s disease

Encourage others to show their support by wearing blue, the official color for Huntington’s disease awareness. This can spark conversations and increase visibility for the cause.

5

Organize a virtual fundraiser

In today’s digital age, it’s easier than ever to organize a fundraiser online. Consider setting up a virtual event, such as a silent auction or online concert, to raise funds and awareness for Huntington’s disease.

Why Huntington’s Disease Awareness Month is Important

A

Brings attention to the disease and those it affects

Huntington's Disease is a devastating genetic disorder that affects both the physical and mental health of individuals. By raising awareness about this disease, we can honor those living with it and educate others about the impact it has on families and communities.

B

Encourages research and funding for a cure

Huntington's Disease Awareness Month is an opportunity to highlight the urgent need for more research and funding towards finding a cure. By spreading knowledge and support, we can help advance treatments and ultimately find a cure for this debilitating disease.

C

Provides support for families affected by Huntington's Disease

For those who have a loved one with Huntington's Disease, this month serves as a reminder that they are not alone in their journey. It brings together a community of support, understanding, and resources for families and caregivers to help them cope with the challenges of this disease.

Huntington’s Disease Awareness Month Dates

Year
Date
Day
2023
Apr 30
Sunday
2024
Apr 30
Tuesday
2025
Apr 30
Wednesday
2026
Apr 30
Thursday
2027
Apr 30
Friday